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Beyond Batten Disease Foundation adds a diverse set of skills and expertise to their Board of Directors

AUSTIN, Texas – Beyond Batten Disease Foundation (BBDF) is honored to welcome three new board members to their Board of Directors (BOD). The new directors include Sabrina Brown, Caroline Goodner, and Scott Young, DDS.

Sabrina Brown received her B.S. at Texas A&M University and her master’s degree in public affairs from the University of Texas at Austin. She is an accomplished lobbyist and political consultant with over 20 years experience in Texas government and politics. Her expertise in the state’s legislature, regulatory, public affairs and appropriations arenas provides a variety of businesses and organizations, from aeronautics giants to groundwater districts to Fortune 50 companies, with vital political and governmental guidance. Sabrina served as the co-chair of BBDF’s Date Night with Keith Urban in 2012 and served as the first president of BBDF’s Development Board in 2013.

Caroline Goodner is the CEO of OrganiCare, an all-natural and organic over-the-counter healthcare products company. She received her B.A. from Duke University and her MBA from Rice University. In addition to her current position, she is a mentor with SKU, a startup incubator in Austin and is on the steering committee for the Austin Chapter of the Rice Alliance. She was formerly owner and CEO of genetic services companies MendelWorks and Identigene, as well as CEO of UpSpring Baby, a family-focused consumer products company.

Scott Young, DDS, is the owner of Woodlands Premiere Dentistry in The Woodlands, Texas. He is an avid supporter of BBDF’s fund in the Woodlands, The Will Herndon Fund, and has been involved in fundraising activities with BBDF since 2008. Dr. Young is a graduate of the University of Texas Dental Branch in Houston, Texas and the Las Vegas Institute (LVI), an achievement reached by less than 1% of cosmetic dentists.

Other members include; Craig Benson, Board Chair and co-founder of BBDF, Jeff Hunt, partner and co-founder of Pulse Point Group, and William Murphy Jr., CFP, Senior Vice President and Senior Financial Advisor with Wells Fargo. You can find out more information about the BOD and BBDF by visiting


Beyond Batten Disease Foundation (BBDF) is the world’s largest nonprofit organization dedicated to funding research for a treatment and cure for juvenile (CLN3) Batten Disease. Since its inception in 2008, over $16 million has been invested in research by leveraging donations, co-funding and strategic partnerships. BBDF is spearheading a unique, cohesive strategy, incorporating independent scientific resources and collaboration with related organizations to drive research in juvenile Batten Disease. Today there is a treatment in sight. BBDF funded research has discovered a drug that slows the progression of the disease in Batten models. The foundation has launched a 24 month $6 million campaign to advance the treatment to clinical trials. More information can be found at




Mary Beth Kiser

(512) 275-2600